*sigh* It seems that we just get a handle on things, then something else happens. William was at a birthday party on the weekend and ended up having a reaction to the birthday cake. Thankfully, while unpleasant, it was relatively minor. But the problem we run up against, again, is labelling.
Theoretically, it should have been okay, as he hasn't had reactions to anything previous to this to things (other than sulphur dioxide) that were present in concentrations under 10 ppm. That's now changed, as while there were no sulphites explicitly present in the cake, there were ingredients (which I normally avoid at home) that are either exposed to or contain small amounts (under 10 ppm) of sulphites. So we're going to have to be even more vigalent to make sure that he's not getting those things, either. Until I can determine the specific culprit, I think we'll be bringing more of our own food to events like these.
My Anaphylactic Kid
August 8, 2012, our lives changed when my youngest son, William, had an anaphylactic reaction to sulphur dioxide on packaged, ready-to-eat grapes. This blog follows our lives from this first reaction, through testing, and beyond.
Monday, April 8, 2013
Monday, April 1, 2013
Who knew .... ?
So, apparently in-store made items do not necessarily have to have sulphites listed in their ingredients. Ask me how I know this ... you know you want to.
Products that are produced and packaged (in bulk) in-store are exempt from ingredient declaration (see A16), which means that the bread cubes I used for the stuffing in yesterday's turkey didn't need an allergen label, this despite the fact that these cubes are the only logical source for the (thankfully) minor reaction that William had after supper last night. *sigh*
I'll admit, I was in a hurry and used what I had on hand in the freezer. I did check the label, but assumed because there wasn't a "contains ..." statement that it was okay. If I'd have been thinking, I'd have noticed that the package didn't list "Contains: wheat," which should have put up a warning flag.
Regardless, he's fine today, but I'll be making my own bread cubes from now on, too.
Products that are produced and packaged (in bulk) in-store are exempt from ingredient declaration (see A16), which means that the bread cubes I used for the stuffing in yesterday's turkey didn't need an allergen label, this despite the fact that these cubes are the only logical source for the (thankfully) minor reaction that William had after supper last night. *sigh*
I'll admit, I was in a hurry and used what I had on hand in the freezer. I did check the label, but assumed because there wasn't a "contains ..." statement that it was okay. If I'd have been thinking, I'd have noticed that the package didn't list "Contains: wheat," which should have put up a warning flag.
Regardless, he's fine today, but I'll be making my own bread cubes from now on, too.
Saturday, March 23, 2013
Unexpected complications
It's been a crazy month, during which William's broken his arm, then had surgery twice on it (once in Phoenix, the second time here in Saskatoon). There's nothing quite like having to explain, repeatedly, to health care professionals (1) what sulphites are, (2) what sulphites are in, and (3) what happens when William is exposed to them. Oh, and then there's having a discussion with your husband, who's in a different country in the ER with William, about what William can and cannot have to eat. Oy vey!
So the pins come out and the cast comes off in four days (not nearly soon enough, in William's mind), and we're slowly returning to normal. But I'm left thinking that there's a knowledge gap when it comes to sulphite sensitivity , especially when I've had more than one medical professional look askance at me when I explain the difference between sulphites and sulphates, and that William's had anaphylactic reactions to the former, and not the latter. Anyway, there's definitely a gap in the knowledge base about sulphite sensitivity, a gap that really deserves to be filled, one way or another.
And we've managed through almost a month of crappy eating, injuries, illnesses, and travel to not have a single sulphite-related reaction. W00T! Let's hope that we see more of this in the future (crossing fingers).
And we've managed through almost a month of crappy eating, injuries, illnesses, and travel to not have a single sulphite-related reaction. W00T! Let's hope that we see more of this in the future (crossing fingers).
Monday, February 18, 2013
Getting ready for school
It might seem a bit odd, but I’m already beginning to think
about September, when William will enter Kindergarten. There are a million questions and concerns
racing through my mind, and I’m feeling a bit discombobulated, trying to figure
out which of these should take priority.
Unlike other provinces (Ontario
and British
Columbia), Saskatchewan doesn’t have
policy or set of regulations covering anaphylactic children in school
settings. Prairie Spirit School District
does have guidelines
for administering an EpiPen (or other necessary medication) to students,
and has guidelines
for dealing with anaphylactic children in the school (see section JFL). That being said, we’re not dealing with an
allergy that most people are familiar with.
The school is peanut- and scent-free (which I’m not going to get into, here),
but it’s inconceivable, because of the ubiquity of sulphites, for this to be an
option for William.
I’ve already had a preliminary discussion with his classroom
teacher, and will schedule a meeting with her and the principal for later this
spring. In the meantime, the dearth of
readily-available (and understandable, which is a whole different issue)
information on sulphites and sulphite-sensitivity is presenting a bit of a
problem. Sounds like a fact sheet might
be in order.
Saturday, February 16, 2013
Bundt pan banana bread
Bundt Pan Banana Bread
This recipe is a staple in our house, and always made in the bundt pan. Best served warm, and even better with peanut butter!Adapted from The Best of the Best and More.
Ingredients
- 1 cup organic, unsalted butter, room temperature
- 2 cups organic white sugar
- 5-6 mashed ripe organic bananas
- 4 organic, free range eggs
- 2-1/2 cups organic no-additive unbleached white flour
- 2 tsp organic baking soda
- 1 tsp sea salt
- 1 tsp freshly grated organic nutmeg
Instructions
- Preheat oven to 350F.
- Cream together butter and sugar in a large bowl.
- Add bananas and eggs. Beat until mixed well.
- Mix dry ingredients together in a medium bowl.
- Add dry ingredients to banana mixture. Be careful not to overmix.
- Pour into greased bundt pan (or two greased loaf pans).
- Bake 50 to 55 minutes. Test for doneness before removing (toothpick in middle should come out clean).
- Cool on rack for at least 10 minutes before removing.
- If freezing, cool completely, then wrap tightly in plastic wrap before freezing.
Sunday, February 10, 2013
Pumpkin cranberry oatmeal muffins
We're completely out of baking at the moment, primarily due to the nasty stomach bug that's laid all of us up for the last ten days. Yuck. So it's time for an über-baking morning. On this morning's list is banana bread (recipe to come later), multi-grain bread and buns, shortbread cookies, and pumpkin cranberry oatmeal muffins (made with the last of the pumpkin puree I made in December ... of which I will make much, much more next year).
Pumpkin Cranberry Oatmeal Muffins
(adapted from The Kitchen Magpie)
Makes 12 muffins
Ingredients
- 1 cup of organic pumpkin puree
- 1/2 cup packed organic, unsulphured brown sugar
- 1/3 cup unsweetened organic applesauce
- 1/4 cup water
- 2 eggs
- 1 cup organic stone ground red spring wheat flour
- 1/2 cup steel cut whole flake organic oatmeal
- 1/4 cup ground organic flax seed
- 3/4 cup organic cranberries (fresh or frozen)
- 4 tsp organic, non-aluminum baking powder
- 1 tsp organic cinnamon
- 1/4 tsp organic ginger
- 1/4 tsp grated fresh organic nutmeg
- pinch organic cloves
- 1/2 tsp sea salt
Instructions
- Preheat oven to 350F.
- Combine dry ingredients in a large bowl.
- Mix eggs, pumpkin, water, applesauce, and brown sugar in a medium bowl until well blended. Do not overmix.
- Fold in cranberries.
- Make a well in the dry ingredients, then add the wet ingredients and mix just until combined.
- Pour batter into a greased muffin tin. Note: Do not use paper liners, as these muffins will stick.
- Bake 18 - 20 minutes, until tops spring back lightly when touched. (If using whole wheat flour, decrease cooking time to 15 - 17 minutes.)
Saturday, February 2, 2013
Reaction? Stomach bug? Argh ...
William had an episode of major gastrointestinal distress late Thursday evening, to the point that I couldn't even get Gravol to stay down. We limped through the night--nine loads of laundry later--and he managed to sleep a bit. The boys had eaten out with D that evening, so my first suspicion was an allergic reaction to sulphites. Thankfully, this wasn't the case, as it seems that all four of us have the same bug now, but it did get me to thinking.
Before, my first reaction would've been to give him Gravol and Kaopectate, then check his temperature and keep him clean and comfortable. Now, I'm immediately giving him Benadryl, then watching him like a hawk, waiting to see if it's just a GI bug, or if it's something more nefarious, requiring constant watch to ensure that it's not the beginning of an anaphylactic reaction. I feel like I'm over-reacting, but I need to keep him safe ... and there seems to be a constant war between the two, which is a bit uncomfortable, to say the least. Where do you draw the line between rationality and obsessiveness? I don't know, at least not right now. We seem to be making the rules up as we go. I just hope we're making the right ones.
Before, my first reaction would've been to give him Gravol and Kaopectate, then check his temperature and keep him clean and comfortable. Now, I'm immediately giving him Benadryl, then watching him like a hawk, waiting to see if it's just a GI bug, or if it's something more nefarious, requiring constant watch to ensure that it's not the beginning of an anaphylactic reaction. I feel like I'm over-reacting, but I need to keep him safe ... and there seems to be a constant war between the two, which is a bit uncomfortable, to say the least. Where do you draw the line between rationality and obsessiveness? I don't know, at least not right now. We seem to be making the rules up as we go. I just hope we're making the right ones.
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